Games, Games and More Games

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Okay, if you just read the title it kind of sounds fun. But it is anything but fun. Life has really been to hectic for me to update, other then very briefly, all that has been going on. So here goes!

The end of March I received a letter from the Illinois Care Grant Program Collaborative stating that my son, who is mentally ill, no longer qualifies for the grant they had been providing for his care in a residential placement facility. We submitted an appeal to this denial which is in review right now. In addition I am applying for a new grant, which of course means lots of paperwork and lots of time.

On April 20th, I received a phone call from my sons school social worker stating that he had sought her ought and told her he had been hallucinating and was very depressed, and that he had told us that past weekend the same thing. I happened to have been in the car while talking with her on the phone, traveling with my attorney to Springfield to a news conference. That conversation in turn, began the wheels turning which eventually landed my son hospitalized at a lock down facility. In the process of all of this, it came to light that my son had mentioned to multiple staff members his depression and the auditory and visual hallucinations and was told such things as, "Your lying," "Your being manipulative", "Go take a shower it will all be better", "Your faking" and etc.

In the interim, while my son was placed in the hospital, I continued to work on finding a placement that was more suitable for him. I went to the house that he had been placed and picked up his clothes and other items. Upon getting them home, there was not one piece of clothing or bedding that was soaked with urine. They had not returned all of his personal items, and dirty dishes were thrown in the boxes with other stuff. Some of his bedding was actually still wet, and this was several days after his initial hospitalization. At this time none of his money, his food cards or his medications were allowed to come with me.

Yesterday I had an IEP meeting with the school district. This did not get completed and so we will have to meet again next week. We have asked the school district to pay for sons residential placement in the event that we do not win the appeal with the ICG, not sure what they are going to do.

Now today, son was discharged from Hospital with the recomendation that he attend a theraputic day school in the interim. I went to fill his meds that he was discharged with, and of course our insurance and the state will not fill them because that has already been done! We called the house to have the meds released, and they refuse to do so until tomorrow when he is officially discharged, even though if he were home for a visit they could send meds with him. So I have a child, just released from the hospital, with no meds!!!!

this is just a very brief over view of what has happend. It is a lot more complicated and involved. In the midst of all of this, I have had to continue to push myself far past the "limits" I know I have to have in place. And since he is home for at the very least 3 weeks, I will have to continue to push myself. The only question is how long before my body says no more and shuts completely down.